Gina Heslop
Evan Fasciano is a 5-year-old boy who surprised everyone with this extraordinary condition. The boy from Connecticut has a rare disease that affects his body. The 5-year-old was born with harlequin ichthyosis.
This disease affects his organization and skin, causing the skin to grow faster. According to doctors, the disease affects the growth of the skin 10 times faster. This is unusual at Evan’s age and his family is shocked.
Evan’s skin grows faster than that of normal children and this affects the faster infection from other diseases. For this reason, he must be very clean and live in a sterile environment. Evan bathes almost every day, twice a day. This disease has progressed a lot and now the doctors show that the cure is more difficult.
Infections can enter Evan’s body very quickly and this can become visible on the surface of the skin. In addition, he takes specific medications for this condition and is careful with the shampoos he uses because they can negatively affect his skin.
Doctors have forbidden him to stay in the sun for a long time. this would cause dehydration, which endangers the health of the 5-year-old even more. Even he should consume a lot of water.
Also, this condition has affected his family. Evan’s mother left her job to take care of her son because his condition is very dangerous for his life. According to the parents, Evan Fasciano is aware of his health condition and sometimes feels affected. However, he tries to be an optimistic child and has many friends.
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