Gina Heslop
Andrea West’s journey has been marked by love, loss, and resilience. After experiencing a miscarriage, she found solace in the support of her husband and embarked on a new pregnancy filled with cautious hope. Determined to ensure the health of her baby, Andrea made significant lifestyle changes and immersed herself in pregnancy literature.
As the due date approached, Andrea’s contractions began, but a sudden ultrasound revealed a concerning lack of amniotic fluid. The medical team had no choice but to induce labor immediately. The birth went smoothly, but joy quickly turned to worry when it was discovered that something was wrong with Adam’s leg.
Adam was whisked away by a flurry of medical professionals, leaving Andrea’s husband with a heartbreaking glimpse of their son’s condition. No one explained the situation to Andrea, and she felt isolated and anxious in the hospital ward.
Eventually, Adam was diagnosed with Cutis Marmorata Telangiectatica Congenita (CMTC), an extremely rare vascular malformation. The news was overwhelming for Andrea and her husband, considering there had been only 500 reported cases of the disease worldwide.
Adam underwent numerous tests, which thankfully showed no complications with his vital organs. Andrea spent sleepless nights in the NICU, anxiously caring for her son. Despite the challenges, Adam proved to be a fighter, and over time, his resilience became apparent.
Today, Adam is a happy and healthy young boy with a love for math and chess. Although his condition affects his leg strength, he embraces his differences and sees no obstacles in his path.
Andrea West is actively involved in the CMTC Alliance, a global non-profit organization that supports individuals diagnosed with rare vascular malformations. She works tirelessly to raise awareness and advocate for those affected by these conditions.
By sharing Adam’s story and considering a donation to the CMTC Alliance, we can contribute to the well-being of individuals facing rare diseases. The West family’s journey is a testament to the power of resilience and the importance of supporting those with uncommon illnesses. Help spread the message of hope and acceptance by sharing this inspiring story with your friends on Facebook.
